What is NMO?

                                        What is NMO? 

NMO stands for neuromyelitis optica, originally known as Devic’s Disease. NMO is currently an incurable but treatable autoimmune disorder. The body’s immune system attacks its own healthy cells, most commonly in the optic nerves and spinal cord. It can cause temporary or permanent blindness and/or paralysis, and may have periods of remission and relapse.
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What causes NMO? 
At present, the specific cause(s) of NMO are unknown. However, most experts believe that NMO results from a dysfunction in immune tolerance, which is the immune system’s ability to distinguish one’s own cells or proteins from potentially foreign materials.

                                       How common is NMO? 
Based on recent epidemiologic reports, there are an estimated 4,000 cases in the United States and a half million worldwide. As with many autoimmune conditions, females are affected by the disease more commonly than males, at an approximate ratio of 6:1. NMO can affect both children and adults. NMO is often called an orphan disease because it is so rare. 

Are NMO and MS the same thing? 

NO! Until recently, NMO was thought to be a type of Multiple Sclerosis. However, recent discoveries indicate that NMO and MS are distinct diseases. With so many symptoms in common, NMO can sometimes be confused with MS or other diseases. But these diseases are treated in different ways and early detection and treatment help ensure best outcomes. For these reasons, it is important to seek clinical care as soon as possible if symptoms occur.

Is there a lot of research out about NMO? 
No! There is not a lot of research and everyday they are working towards finding new information. Almost everyone who is diagnosed with NMO are in at least one research study or another. That is one of the most important things about orphan diseases is that there are not enough information! 

Can I donate or help to find a cure somehow? 
YES!!!!!! You can always help towards finding a cure. If your interested you can contact me if you have fundraising ideas or general questions or head on over to The Guthy-Jackson Charitable Foundation for more info. There is a store where you can purchase t-shirts bracelets and such as well! 

Any other questions, comments, or concerns don't hesitate to contact me! 

Information about was taken from The Guthy-Jackson Charitable Foundation website